
Connecticut currently has five waivers that are open to children and all are HCBS 1915(c) Medicaid waivers. Three of these programs waive parental income; we do not know the status of the others. For general information on Connecticut’s waivers for people with developmental disabilities, see this overview. Information on other waivers can be found here.
Connecticut offers the Community First Choice Option for individuals already on Medicaid, who can receive personal care services regardless of age.
Advocacy Organizations in Connecticut:
- PATH Parent-to-Parent/Family Voices of Connecticut
- Disability Rights Connecticut
- The Arc of Connecticut
Last updated 11/18/24
Programs in Connecticut
Note: this program is a 1915(c) waiver, not a TEFRA/Katie Beckett program, despite the name
- Target Population: Children with physical or other health disabilities.
- Ages: 0-22
- Levels of Care: Intermediate Care Facility, Nursing Facility, Hospital
- Income Waiver: Yes, the waiver is based on the child’s income only. Parent income is not counted.
- Waiver Type: 1915(c)
- Spots: 362
- Expiration Date: 12/31/2026
- Description from medicaid.gov: Provides case management to individuals with physical disabilities ages 0-22.
- Online State Information: This Katie Beckett webpage or this document
- Official Federal Information
- How to Apply: Contact (800) 445-5394 or (860) 424-5582.
- Waiting List: There are 295 children who are medically fragile on the waiting list in Connecticut and 1140 adults with physical disabilities. The waitlist time has historically been 6-7 years on average.
- Target Population: Children and adults with autism.
- Ages: 3+
- Levels of Care: Intermediate Care Facility
- Income Waiver: unknown
- Waiver Type: 1915(c)
- Spots: 475
- Expiration Date: 12/31/2027
- Description from medicaid.gov: Provides live-in companion, respite, assistive technology, clinical behavioral support services, community mentor, individual goods and services, interpreter, job coaching, life skills coach, non-medical transportation, personal emergency response system, social skills group, and specialized driving assessment services to individuals with autism ages 3 or older who meet an ICF/IID level of care.
- Online State Information: DDS Autism Services
- Official Federal Information
- How to Apply: Contact Autism Services at 860-418-6078. Application is available here.
- Waiting List: Connecticut currently has 2036 individuals with autism on a waiting list.
- Target Population: Children and adults with intellectual disabilities.
- Ages: 3+
- Levels of Care: Intermediate Care Facility
- Income Waiver: Yes, the waiver is based on the child’s income only. Parent income is not counted.
- Waiver Type: 1915(c)
- Spots: 4500
- Expiration Date: 1/31/2028
- Description from medicaid.gov: Provides adult day health, blended supports, community companion homes, group day supports, individual supported employment, live-in companion, prevocational services, respite, independent support broker, assistive technology, behavioral support services, companion supports aka adult companion, continuous residential supports, customized employment supports, employment transitional services, environmental modifications, group supported employment, health care coordination, home delivered meals, individualized day supports, individualized home supports, individually directed goods and services, interpreter, nutrition, parenting support, peer support, personal emergency response system, personal support, remote supports services, senior supports, shared living, specialized medical equipment and supplies, training/counseling/support services for unpaid caregivers, transportation, and vehicle modification services to individuals with developmental disabilities ages 18 or older, and individuals with intellectual disabilities ages 3 or older who meet an ICF/IID level of care.
- Online State Information: Individual and Family Supports
- Official Federal Information
- How to Apply: Contact the Department of Developmental Services or call 860-418-6000. See also this info on applying.
- Waiting List: Connecticut does not currently have a waiting list for I/DD, but does have 2036 individuals with autism on a waiting list.
- Target Population: Children and adults with intellectual disabilities.
- Ages: 3+
- Levels of Care: Intermediate Care Facility
- Income Waiver: unknown
- Waiver Type: 1915(c)
- Spots: 3339
- Expiration Date: 3/31/2026
- Description from medicaid.gov: Provides adult day health, blended supports, group day supports aka community based day support options, individual supported employment, prevocational services, respite, independent support broker, peer support, assistive technology, behavioral support services, customized employment supports, environmental modifications, group supported employment, individual direct goods and services, individualized day support, interpreter, personal emergency response system (PERS), remote supports services, specialized medical equipment and supplies, training, counseling and support services for unpaid caregivers, transitional employment services, transportation, and vehicle modifications for individuals with DD (ages 18 – no max age) and individuals with ID (ages 3 – no max age).
- Online State Information: Employment and Day Supports
- Official Federal Information
- How to Apply: Contact the Department of Developmental Services or call 860-418-6000. See also this info on applying.
- Waiting List: Connecticut does not currently have a waiting list for I/DD, but does have 2036 individuals with autism on a waiting list.
- Target Population: Children and adults with intellectual disabilities needing extensive supports.
- Ages: 3+
- Levels of Care: Intermediate Care Facility
- Income Waiver: Yes, the waiver is based on the child’s income only. Parent income is not counted.
- Waiver Type: 1915(c)
- Spots: 5700
- Expiration Date: 9/30/2028
- Description from medicaid.gov: Provides adult day health, blended supports, group day supports, group supported employment, live-in caregiver, prevocational services, respite, independent support broker, assisted living, assistive technology, behavioral support services, community companion homes, community living arrangements, companion supports aka as adult companion, continuous residential supports, customized employment supports, employment transitional services, environmental modifications, health care coordination, home delivered meals, individual directed goods and services, individual supported employment, individualized day supports, individualized home supports, interpreter, nutrition, parenting support, peer support, personal emergency response system, personal support, remote supports service, senior supports, shared living, specialized medical equipment and supplies, training/counseling/support services for unpaid caregivers, transportation, and vehicle modification services to individuals with developmental disabilities ages 18 or older and individuals with intellectual disabilities ages 3 or older who meet an ICF/IID level of care.
- Online State Information: Comprehensive Supports
- Official Federal Information
- How to Apply: Contact the Department of Developmental Services or call 860-418-6000. See also this info on applying.
- Waiting List: Connecticut does not currently have a waiting list for I/DD, but does have 2036 individuals with autism on a waiting list.
Additional Information
- Connecticut’s Title V Program: Children and Youth with Special Health Care Needs
- Connecticut’s Early Intervention Program: Birth to Three System
- Legislative committees recently approved paid family caregiving for three developmental disability waivers.
- The state lists the following information in various waiver applications: “For parents with school age children approved to provide IHS, respite, individualized day, personal supports and/or senior supports under this waiver, all supports that can be provided by such parent have a combined cap of 800 awake hours of support annually with the ability to request a prior approval exception for hours over the cap. For parents with school age children requesting to provide such support and be compensated, an assessment to determine age-appropriate dependency that meets the criteria of extraordinary care is required. This assessment will be done through a form that utilizes a rating scale that reflects support or assistance a child needs that exceeds the typical standard of care for any child. The state has finalized this form. For legal guardians approved to provide IHS, respite, individualized day, personal supports and/or senior supports under this waiver, all supports that can be provided by such legal guardian have a combined cap of 2100 awake hours of support annually with the ability to request a prior approval exception for hours over the cap.”
- Connecticut also uses a 1915(k) amendment to allow family members to provide personal care services; however, guardians and legally responsible individuals are not eligible.